09 Sep 2015
The International Federation of Psoriasis Associations (IFPA), the International League of Dermatological Societies (ILDS) and the International Psoriasis Council (IPC) have formed a partnership to develop a Global Psoriasis Atlas to fill the gaps in the understanding of the prevalence and burden of psoriasis.
While studies over the recent years have contributed to an improved understanding of psoriasis, there are still significant gaps in knowledge related to the epidemiology of this serious, chronic disease and trends in incidence over time. The World Health Organization (WHO), reported in 2013 that the worldwide prevalence of psoriasis is around 2%, but that studies in developed countries have declared prevalence rates of more than twice the global estimate at an average of 4.6%.
The project's initial task therefore will be to establish a credible and reliable database recording the prevalence of psoriasis worldwide and by country. "By gathering data on the prevalence of psoriasis from as many countries as possible we will be able to form a clear picture of the burden of psoriasis worldwide and in so doing inform better decision making on the use of resources," says Professor Wolfram Sterry, president of the ILDS.
While gathering detailed information on prevalence, the initiative will undertake to build a framework for improved collection of data on the burden of psoriasis. In the long-term, the aim is to look at incidence over time and the burden associated with comorbidities as well as the economic impact of psoriasis. "The atlas project is about driving constant improvement in the understanding of psoriasis and encouraging the ongoing collection of data and research," according to Professor Christopher Griffiths, president of the IPC.
The development of a Global Psoriasis Atlas is a long-term project that seeks both to drive continuous improvement in the understanding of psoriasis and uncover how it affects both the individual and society at large. Due to lack of evidence, among other factors, recognition of psoriasis as a serious, noncommunicable, chronic disease that is widespread and represents a significant public health challenge is poor - at both the local and global level. Lars Ettarp, president of IFPA explains that, "building an evidence base that all stakeholders can use to advocate for improved treatment, access to care and recognition of psoriasis is a priority. Only once we truly understand the burden will we be able to command the recognition that people living with psoriasis deserve."
The objectives of this joint project are to:
The International Federation of Psoriasis Associations (IFPA)
The International Federation of Psoriasis Associations (IFPA) is a nonprofit organisation made up of psoriasis associations from around the world.
IFPA unites psoriasis associations so that their global campaign for improved medical care, greater public understanding and increased research will improve the lives of people who live with psoriasis and psoriatic arthritis. Through cost effective, successful and high quality programmes such as World Psoriasis Day and the World Psoriasis & Psoriatic Arthritis Conferences, IFPA brings together psoriasis associations, healthcare professionals and the healthcare industry to actively pursue the vision of a world without human suffering from psoriasis.
The International League of Dermatological Societies (ILDS)
The International League of Dermatological Societies (ILDS) is a non-governmental organisation in official relations with the World Health Organization.
It was formed to:
The International Psoriasis Council (IPC)
Founded in 2004, The International Psoriasis Council (IPC) is a dermatology led, voluntary, global nonprofit organisation dedicated to innovation across the full spectrum of psoriasis through research, education and patient care. The mission of the IPC is to empower our network of global key opinion leaders to advance the knowledge of psoriasis and its associated comorbidities, thereby enhancing the care of patients worldwide.
Professor Chris Griffiths - Manchester, United Kingdom
Professor Darren Ashcroft - Manchester, United Kingdom
Prof. Dr. med Matthias Augustin - Hamburg, Germany
Dr. Carsten Flohr - London, United Kingdom
Professor Luigi Naldi - Bergamo, Italy
Prof. Dr. Tamar Nijsten - Rotterdam, the Netherlands
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